Inclusive language
How language influences safety, trust, access and belonging in health care.
Writing & research
Ideas that move between lived experience, research and public conversation.
Emily writes about the language of care, chronic illness, patient partnership and the systems that influence whose knowledge counts.
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Areas of focus
Patient access
Transparent communication, OpenNotes and the role information plays in a person's care.
Complex chronic illness
The diagnostic odyssey, under-recognized conditions and gaps in care and research.
Patient partnership
Whose knowledge counts—and what meaningful participation requires.
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Published work
Writing that connects personal experience to public systems.
Read Emily's commentary on inclusive language, access to information, complex chronic illness and the need for better research and support.
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Articles & essays
Writing grounded in lived experience and shaped by systems.
Emily writes about inclusive communication, patient access, complex chronic inflammatory illness and meaningful partnership. Her writing connects personal experience with the policies, practices and assumptions that shape health care.
Healthy Debate · 2026
Transparency is not risk free. But neither is restricted access
Read article ↗Healthy Debate · 2025The words we use: Why inclusive language in health care is about safety
Read article ↗Healthy Debate · 2025The MCAS care crisis: Canada can't afford to look away
Read article ↗Healthy Debate · 2024AI offers hope to those suffering from MCAS
Read article ↗Healthy Debate · 2024Along with millions of others, I live with MCAS. There is an urgent need for research and support
Read article ↗Book in progress
Before It's Too Late
A literary memoir exploring chronic illness, medical gaslighting, trauma, systemic bias and the work of reclaiming voice.
The manuscript draws lived experience into a broader examination of how health systems listen, what happens when they do not and what it takes to be believed.
Publishers & editors: request the book proposal →Next
Keep exploring
Selected work
See the ideas applied
Explore the Clear Guide, OpenNotes and other project stories.
Explore →SpeakingHear Emily speak
Discover topics for keynotes, panels and facilitated conversations.
Explore →About EmilyRead the fuller story
Learn how lived experience reshaped a career in communication.
Explore →Have a project in mind?
Build something more inclusive, practical and grounded in real experience.
If you're working in health care research, education or communication, let's talk about where Emily's perspective could help.
Let's chat